Her mother was prepared for her life to change after having a baby. But she didn’t know what fate had in store for her
Physical contact for a newborn is important, just as it is during the first months of life, as it stimulates brain development. However, due to a genetic mutation, a small portion of the population is born with a strange syndrome that makes skin contact with another person or object pure agony.
Lennon Gregory Kale is a 5-month-old baby, born in Pennsylvania, United States, who just one day after his birth was diagnosed with a skin disease called epidermolysis bullosa, or better known as “butterfly skin”, according to reports Daily Mail.
A resounding change
Lennon’s mother, Shelby, was looking forward to the arrival of her first child. She knew that her life would change completely. What she did not imagine is how much. From now on, having a newborn at home offers us a new way of organizing our life. At first, it takes time to get used to the new routines, but then you realize that having a child is the most wonderful thing in the world.
For Shelby the change was even more resounding. “We had a perfectly healthy pregnancy, and there was no reason to suspect that my baby would suffer from such a terrible disease,” the child’s mother explained to the Daily Mail. Everything seemed fine at first, but after some routine examinations the doctors gave her They told the parents that the child’s skin was beginning to blister.
They thought those blisters were herpes. But when the doctor removed the socks from the little foot and a piece of skin came out next to them, they realized that the situation was serious. Babies’ skin is always very sensitive, but Lennon’s skin was extremely sensitive, so much so that it peeled off at the same contact.
The diagnosis came after extensive examinations and medical check-ups. The little boy was affected by epidermolysis bullosa, a genetic disease caused by a lack of collagen in the skin, which results in any trauma or friction to the skin causing painful blisters that take a long time to heal.
According to Medline Plus, this condition is transmitted from parents to children, but in Lennon’s case, it had been a genetic transmutation during pregnancy. Some of the symptoms of this disease are.
Alopecia (hair loss)
Blisters around the eyes and nose
Blisters on or around the mouth and throat
Blisters on the skin as a result of minor injury or a change in temperature
Blistering present at birth
Dental problems such as cavities
Hoarse cry, cough, or other breathing difficulties
Tiny white bumps on previously injured skin
Nail deformity or loss
She wanted to hold her baby
Doctors told Shelby at first that she might never be able to hold her baby because her skin would tear if she did. “Hearing that, I knew we would have to find a way to avoid it, because there is no way I would not be holding my son,” the woman said.
However, despite the bad news, the good news is that Lennon has one of the three types of this disease, the so-called “Symplex”, which means that over time his symptoms may subside. They just don’t know for sure when that will happen.
A very special care
Meanwhile, the care is rigorous. Every day, the baby has to take a series of medications, including morphine and zinc, and the care that they must take regarding the appearance of blisters is inflexible. To prevent him from scratching his skin when it itches, his mother applies an antifungal cream. Then, when any of these blisters burst, they should proceed carefully and disinfect the area by applying specific products, in addition to oil to protect the skin.
Being so small the work is twofold. Babies put everything in their mouth, so you should pay attention when your baby brings an object to her mouth, as blisters form inside it. How do you tell a baby not to? Without a doubt, the work of these parents is hard and they still have a long way to go.
Despite everything, the mother of this beautiful baby says that “he is a happy boy.” His family has found comfort by joining groups of people with the same disease online. Due to the rarity of the disease, this is where, in addition to complementary information, they obtain support and advice.