Autism is not a declaration of death or a life sentence. It is a condition that invites us to accompany our child with more love than ever.
Rosy was 4 years married and 4 months pregnant with her second child. The oldest, Rubén, had just turned two years old and it was during his visit to the pediatrician that the specialist told him that he was seriously concerned about the child’s development. Although they had talked in previous appointments that the little one was ” slightly delayed “, Rosy was not very concerned because she thought it was because he did not socialize much with other children his age and at the moment they thought that it would only be a brief delay in the He talks but nothing serious to worry about.
However, the pediatrician ordered further evaluations before the delay was greater.
Upon leaving the consultation, Rosy began a journey of no return full of doubts, uncertainty and much sadness. She came home and spoke to her husband about what happened over dinner; She concealed her fear and sadness and ended the comment by saying that perhaps the doctor cared more and that they could wait a little longer, at least until the baby was born.
Her husband listened to her in silence and when she finished speaking he simply said: «Make the appointment with him. specialistAs soon as possible, if our son has something, we should know it now «.
At two years of age, Joan, Rosy’s son, did not respond if someone spoke to him, he was not able to fix his eyes on a point, he did not interact with adults or other children and had episodes of irritability – which many times they thought were big tantrums – and certain compulsive behaviors began.
Psychometric and cognitive evaluations
In order to make a reliable diagnosis, Joan went through a series of general medical studies:
Genetic tests to look for abnormalities in your chromosomes and rule out intellectual disability
Motor, language, social and learning development assessments
Listening, pronunciation and language tests in general
Visit the pediatric neurologist and do an electroencephalogram or MRI
Tests to check blood lead levels
Putting the pieces together and putting the puzzle together
As each specialist cared for Joan, Rosy and her husband gathered endless information about their son and then their second baby was born.
The family’s attention was fully returned to the new member and to the care of the little one and his mother, but as soon as she was able to leave home, they went to the last specialist presenting all the information that the different tests had thrown up. There in the office they received the news: Joan was an autistic child.
The sadness of the confirmation of what they already suspected was only overcome by the great concern of knowing if the new brother would also suffer theAutism spectrum disorder.
The doctor simply mentioned that they would be monitoring the development of the little brother just as they did with Joan.
And after the diagnosis, what’s next?
Rosy and her husband returned home but this time they were neither sad nor alone. Throughout the evaluation and diagnosis process, they met many new people who referred them to other specialists in autistic disorder who could advise them so that Joan would have the necessary care.
When Rosy and her husband felt safe, they spoke with their respective families and gave them Joan’s diagnosis while clarifying doubts and allaying their fears.
Then, the family wrapped them up with love and help to care for both children. Rosy tried to be less apprehensive and understand that her son could have a normal and happy life, perhaps in a different way than she had imagined, but that at the end of the road there was a light, a goal and it was very good.
Rosy learned that it was very important to make a schedule of daily activities, that she could be firm and loving with her son, that the family should be patient and plan changes so that Joan can adapt little by little to the new.
A school for Joan
Rosy then began to look for a school that would adapt to the needs of her son, it was not easy, but they came to an early stimulation center where she could spend 4 years and acquire preparatory skills for her Primary education.
There began a complicated stage, because finding a school where he was accepted and where teachers could develop a special work plan for him was not easy, but they found it. There were always challenges, often tears, but also a lot of joy to see the small achievements and successes that Joan conquered.
His language improved, but not his ability to make friends or relate to others. However, he was a boy accepted and well received by his peers and teachers. At this stage of life, Joan began to show a special taste and facility for painting and mathematics, mental arithmetic to be exact.
High School was a complicated stage and one where Joan did not always meet good friends
Some were even mean to him and made fun of him, but luckily his parents and brother were always there to cheer him on and help him try one more time. Children with the autism spectrum are innocent, they take literally expressions that for others could be funny or mischievous, but for them this makes no sense.
Joan made her high school open in one year and began her studies in painting. He is currently a young artist who supports himself by selling his works, has a girlfriend and is a caring and happy person.
His parents visit him with some frequency and Joan visit them, he is still a bit reserved and his talk is short and simple but his love for his familyit is unconditional because their actions manifest it.
Autism is not a declaration of death or a life sentence, it is not a disease from which someone can be cured, it is a life condition that can be dealt with and moved on. Children diagnosed early can get ahead and have full and happy lives.
If you observe something in your child that makes you suspect about his healthy development, do not hesitate to go to the doctor, this can really make a difference in his life.